| we went back for another blood test hemoglobim is on its way back up, the potassium is still going up, neds to be sorted out cause apparently(the doc told us) when someone is under anesthetic the potassium levels rise in the blood anyway and if they are already high it can cause the heart to stop, oh the news just gets better, so the send us away with another leaflet to read as to what he can and cant have! we are so excited cause we are going on holiday the following week, no one rings us from the hospital, they mustnt have been that concerned with the last blood tests then, scaring us like that! the day we are due to go wawy i go to work and jack decides he will pop up to the hospital have his bloods done, he wants to check he is ok before we go away. you just know it isnt going to be good, we get no good luck at all! i do something stupid and look upto the sky, you know like people do as if they are talking to someone up there! And i ask my grandma and best mate jess to send us some good luck, they must have given it away that day! cause we didnt get any, i think they are saving it for the transplant, so i wont complain. i get a call at work, jacks potassium is very high, high enough to now cause a heart murmur and palpitations! oh charming, so lets get this right, if jack hadnt gone in himself and requested a blood test this would have just got worse, so when would someone have contacted us to ask him to go for a blood test after all he was being monitored wasnt he? or was that forgot about? hmmm! my boss kindly drives me to the hospital, he is sat there looking exhausted, they are waiting for his urgent blood results to come back, he had them done at 2, thsi ward closes at 5 remember, until monday, somehow i think they wont get the results before 5! and it will be passed to the renal ward who will have to dwal with it, if it comes back high its time to go in for a drip tonight as there is something they can give him to bring it down, oh great has nobody thought of giving him this before! last time we were going on holiday, it was only a weekend, my mum and dad were taking us to whitby for a weekend in a hotel to chill, but guess what his bloods that day said his calcium was dangerously high( the weeks before it had been dangerously low!, monitoring is superb as you can tell) so we were told we couldnt go and to stay close by, so we did and he eneded up rushing to hopital in the night with jack being out on a drip etc. so i wasnt going to be impressed if it happened again, they told us to go home and they would ring before they finished to see what would happen when his blood results came through, thet rang just after 5, not ready could we call the other ward at 6.30pm, so we did that, still not ready, could we call in an hour so we tried for an hour but the phone was engaged for nearly an hour, so at 9pm i rang, still not there call at 10, jack was knackered no so he went to bed, i rang at 9.45 and spoke to a nurse they were back( i think i will check with guiness book of records cause they are the fastest urgent blood tests i've ever known, i have to laugh else i will cry!) the nurse was relaying everything i was saying to the doctor and vice versa, so they obvioulsly hadnt been told what the problem was, we were told that they would know all about it and have aplan of action, well maybe on another day but not today! so i asked if i could speak to the doctor as we were due to go away the following day, they wanted us to come homeon the wednesday for a blood test,(so lets get this right when he is at home 25 mins from the hospital they cant remember to monitor him, but now he will be 4 hours away they want him to come back for a blood test? hmmmmm, my mum works at a doctors and said why didnt they just arrange for him to have his bloods done local to where we were? too much hassle don't forget, this was all being arranged on friday at 4pm they finish at 5pm, not enough time to organise) anyway i spoke to the renal doctor a very nice lady she was, jacks potassium was now fine!!!!!!! all the stress of today to tell us that? we could go away the next day as planned, no problems and we didnt need to come back on the wednesday for a blood test, we could do it on the friday or saturday the following week when we came home, i was so glad i spoke to that doctor, she was very nice actually. so we went on holiday couldnt wait for a break for a week, ready for the transplant when we got back! |
Tuesday, 19 June 2007
who is monitoring who
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my husband had a transplant 2 years ago, it has now rejected, well done on jacks lasting so long, he must be doing something right, heres to the next one lasting even longer, the road is tough, i have felt like giving up myself and walking away but i couldnt, someday it will all be ok, people assume you have a transplant and all is ok, they dont see it as a lifetime illness that rocks your world in every direction, keep up the good work
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