apd didnt work

well the machine maybe wasnt the bast choice after all, yes it gives you the dat to yourself, good job really, your are that knackered from the nights you need the day to sleep, i am sure for some kidney patients it works great, but for jack it started to become a nightmare, as the fluid went in he was ok, then when it started to be pumped out it got very painful, he could feel the sensation of something pulling in his peritonium(near your tummy) the pain sometimes was so bad we had to switch off the machine, and what could we do then> your guess was as good as ours, the ward that look after him is a day ward 9-5? so what happens to patients if there is aproblem in the night? the helpline number is purely for technical support for alarms, so basically we were stuffed, we rang the normal renal ward, they werent sure what to do, but if we wanted we could take the amchine in to them and they could"have play around with it" their words not mine, i;d rather not! say they make it worse! when it got to the morning we went to see the nurses that look after jack, they changed his programme, so we would give it another go but oh no it was worse than ever, jack woke up in horrible pain, his face was nearly purple he was in so much pain! he was doubled over in pain, i had to quickly get the manual to stop the dialysis, he said the pain was in his arms and chest and he was gasping for breath, i was really scared, i rang 999, when the paramedics arrived they got him on a ecg machine and treated him for a heart attack! it was awful, i have never been so scared, i felt helpless. so it was trip to the hospital, jacks mum and dad followed on in the car, at the hospital they said it could be reffered pain due to the pump on the machine, and that jack could be sensitive to it, or it could be a heart problem, as many renal patients get heart problems, that paniced jack, and was the last thing he wanted to hear! the renal doctor came to see him and asked us to give it another go on the machine, oh good i thought, here at the hospital,and they can see how scary iy is, but oh no, it was time to go home, so we did it in the day that day, so that there was someone we could speak to if we needed. they changed the programme on the machine to a tidal programme, so the fluid would flow inand out and so shouldnt hurt when it came to pulling the last but of fluid out, cause it would always leave some behind. that day it worked ok, some twinges, but jack said it was bearable, at last a good nights sleep cause he had done his treatment in the day. we shold have known it was too good to be true! a couple of nights later it happened again! ambulance again, he was passing out in pain, it was awful but they wabted us to keep trying, just your body getting use to it!, it was christmas time and we were both so tired i felt so stressed and down my doctor had signed me off work, i felt awful being off work with stress, i didnt tell my mum and dad, i was suppose to be able to cope with all this, i felt like i was useless, i didnt want to be stressed and depressed, i couldnt help it though, we just wanted a nice christmas, but xmas eve in bed was anither long night, jacks foot had swollen up! we didnt know what it was, we rang nhs direct explained everything to them, they thought it would be gout, we thought jack had broken his foot it was so swollen and sore, but he hadnt done anything to it so we didnt understand, as he was on his machine they said they thought it was more important to stay on the machine and do his dialysis and out up with the pain in his foot! so we did just that, so hardly slept.