Tuesday, 19 June 2007

the training and the start of dialysis

so now jack has his dialysis tube, and we are ready to go, we turn up for our training, should be fun, we went through all the usual stuff you expect, they tell us about peritonitis, scary, but as long as everything is done right it should be ok. we have just had the bedroom gutted at home an re done by our 2 dads, so everything even the bed(bought gratefully by my mum and dad) is brand new, jacks dad was at our house every weekend and evening until all hours doing it, but there should be no bugs in there everything is nice and new.
jack is having apd, which is a machine he will connect to each night and it will work for 9 and a half hours, pumping fluid into him, then taking it away and this should take out some of the toxins that his kidney now isnt doing, what a complex machine, who invents them, clever bods!
the first lot of fluid went into jack at the hosital when training and he felt ill, he was very sick but after the initial dose he started to feel ok, it took a while to get our heads around but we had instructions wrote down it took us the 4 days of training, then the day had come for darrens nurse to bring the machine to our house, that was the scary bit, it was left to us then, but we were confident we would be ok.
for a few nights it was, then in the night the machine would alarm, we sat there at 2am with the troubleshooting manual, working out what to do, back to bed, oh its going off again, we dont know what it is this time, so we ring the 24 hr helpline that is on the machine, they will get a technician to call us asap, an hour later we get a call, and it gets sorted, but the night has been along one, disturbed sleep all night, and then you don't sleep the same afterwards like you are waiting for it to alarm again, and all through the night you can hear the machine doing its work, its not really loud, but in the still of the night when it is very quiet you hear everything that your not use to.
ina moring we have to disconnect jack then i have to take the fluid bags downstairs and empty them, with my bad back this wasnt fun, my doc is sending me for xrays, to see what is wrong, inthe meantime i have to rest it, how can i? how else am i suppose to get 5 litres of fluid down the stairs, magic! and like i said a bad back or chronic renal failure? i know what i think is worse, so we get on with it, we are a good team me and jack, good job really, although i have to say that we were very very tired and tempers could rise sometimes, over ridiculous things! but we always sorted it out, it was the situation that made us like that, not eachother, and as long as we kept that in mind it was ok, the machine kept us awake, my back kept me awake, and then thinks got worse

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