moving onto capd

so we had training for capd, it is much gentler and means that the fluid is drained in and out naturally, rather than with a pump, so once your body has given out enough it will stop, no pump pumping for more! yipeee! we still have big deliveries from baxter every month for loads of boxes of fluid etc, which we keep in one of the spare bedrooms, there is loads of it, and jack sometimes gets fed up of seeing it all, but like i say to him, it is keeping him well, remember before christmas when you couldnt even get to the bathroom on your own. sometimes jack gets very down and i try my best to keep him upbeat but sometimes its so hard, cause i amtrying to keep myself upbeat too, ahh well never mind me, im not the one that is poorly, i should just be thankful for that i went into work had a word with my bosses, who have been fantastic and through other sources we are doing a small book on what it is like to be a young renal patient, as jack is on his second tranplant, and for the people taht will ultimately care for them, as no one explained to me quite what it would be like and there was no where i could get any info at all, it was all guess work, and i wish i was maybe better prepared, let people know that some nights the dialysis tube may burst and you have to get to the ward asap to have it changed and have antibiotic fluid drained in etc there are so many things that you never expect, anyway where was i, oh work, they have been very supportive, i feel so guilty sometimes not going in, i feel like i am stuck btween a rock and a hard place, jack could be poorly in hospital and i have to make the decision work or jack, what comes first, at first it was always jack, but now i have learnt waht is and isnt serious as you will soon learn later in this blog, its going to be a difficult year, i have told work what will happen and sorted out what i can, so i am sorting work, where the pets will go etc, hey maybe i will check i'm ready for it one of the days! anyway, jack is now on what they call capd, he has to do t 4 times a day a minimum of 2 hours between each session, it is going so much better it restricts your day more dont get me wrong, but on the machine our nights were disrupted anyway, which in turn ruined our days as we were that tired. so it was back to work for me, it was good to speak to people again! had to get use to it again, but it was good, and i am glad to back in the swing of things.