april/may

that was in march and things were going quite well, then there was a blip in april, blood tests showed that jacks hemoglobin was going down, last time that happened he was really ill, so we didnt want that to happen again, and his potassium was high, not unsafe at the moment we were told, but it was getting that way, so we have to monitor potassium intake and are told all about that, jack has more bloods done and we are called in, we are asked what we have been doing! we are sat there like 2 naughty school kids! his potassium was getting higher, protien was too low, cholestrol was high, and phoshate was high! and hemoglobin even lower, well we dont know what we have done, how about somebody tells us? cause we arent the doctors after all. so its a change of diet and close monitoring, and he is bck to doing his injections once a week rather than fornightly to help the hemoglobin. its a bit of a nightmare to get your head around what he can and cant have, but we muddle through, we went to tesco and did a special shop, and he has a shelf in the fridge so we dont get confused! so lets see what happens when he gets monitored!