can it get any worse!

well on minday we sat in the hospital for nearly 6 hours it was so boring, jack had a headache when he got there we explained to them about how unwell he is afterwards, so today they are going to try something to do with the sodium used in the machine, his blood pressure is 174/105, so its high! before he gets on the machine he has to weigh himself, now the first time he went on dialysis(hemo) 2 weeks ago he was weighed and that is what they call his dry weight, so eachday when he gets there he is weighed and any weight that is over the dry weight is taken away on the machine as they draw the fluid from his blood on the machine, so that when he comes off he should be at his dry weight again, which is all well and good, but the first day they put him on the machine he had been briught into hospital unwell,for nearly 6 days he had hardly eaten and he had been being sick alot each day, so we tried to tell them that we thought it may not be a true dry weight, but NOBODY LISTENED! so when he was weighed at 74.2 and they are saying his dry weight is 71 kg then there is an awful lot of fluid to be taken away, so each time they now think they may have actually got the dry weight wrong! and dehydrated him eachtime! THATS WHAT WE SAID! so today they said they will try something different, on monday night he was so ill, being sick, sat with his head in his hands as his head was that bad, he sat in the dark, we tried putting cold clothes on his head, and guess what the hospital gave him paracetamol! i told the nurse that these didnt touch his headaches that he had had for the past 2 weeks being on heml dialysis, so now he couldnt have any other painkillers yet as she had given them to him, he had a bad head all yesterday too, his blood pressure did come down a litttle, but he is that stressed out about going on the machine that it does him no good, he is dreading it, so we will have to see yet again today, i am going today to sit with him as last time the bed he is on has no buzzer! so they asked me to be the human buzzer again, well i wouldnt like him to be sat on his own and there be a problem! they told us that if the machine did a quiet beep with a message on to let them know and they would do what was needed, but if someone isnt sat with him how do they ant him to do that, scream his loudest to the nurses bay! as he has 2 lines hooked upto him so he cant just jump out of bed, and the other patients in the bay with him are all very old and barely awake, if a nurse tells us again "oh what ashame for a young couple to be going through this" oh thanks we already know we dont need reminding i am ditting with him when they do it today again, its such ashame seeing him hooked up to all the machines his blood pumping round and around, especially when it isnt making him any better, this week i have felt like we have got nowhere, ok so the machine is taking out the toxins to stop him being septic, but apart from that he is just ill from it all! him and his dads tests have all come back ok, why dont the just do the transplant! ahhhhh it does my head in! i am that stressed out at the minute, i spoke to my boss last night, he was fine, but i'm not i worry about work, about darren, and dont seem to have minute to worry about me, my hands flared up again, and i have them covered in dressings, i swear its the stress that does it all, i just wish it would all be sorted out so jack can enjoy life again, which in turn as a couple will mean we both can, i think we deserve a good few years, some good holidays etc, is that too much too ask?