the holiday

so we went on hoilday the next day, it had put out a poor show of weather for the week, but we didnt care we needed the break, it was great, then on the tuesday it all went wrong, jack had another leak! oh no, we rang the hospital and they told him not to do any dialysis until that night, to rest it in the day, it was ok that night, but then it leaked again on the wednesday, so we called them back, dont do any dialysis at all and come and see us when you are home to get your bloods done, so on the fri we were up at the hospital, they did his bloods, urgent again, again they werent ready before the ward staff went home so the other ward had to deal with it, jack took ill over the weekend, was in real need of dialysis, i should have gone back to work that day, no such luck darren was so poorly, his results had rocketed, it was aroasting hot day, the docs said he neeeded an urgent line putting in his neck to do dialysis straight away, so they went to arrange it, he was lay on a bed in the day ward, he was near on delerious i would say, he was writhing around, he kept being sick, there were too many toxins in his bady, the nurse came back, sorry there is no bed, you will have to go home there may be a bed available after 9pm tonight! i was so angry, i asked if they expected me to take him home like this, they said yes, there was nothing else they could do, i explained how worried i was and that last time we had to do this we had to call an ambulance when we got home, and her words were, well if you need to do that then ring for one, my head was pounding, and i was so upset now, im had tears in my eyes and not a single person cared, so she said we could stay there till 5 with them then go home or go now, she said we could make our decision and she would pop back, we decided to go, if we left at 5pm the traffic would be terrible, at least at 2.30 it wasnt so bad, we looked for the nurse who was dealing with us, but she wasnt around so we let the lady know at reception and went we were both crying, i was disgisted that the ward that were suppose to be taking care of us were allowing us to both walk out of there crying! i was so angry. halfway home my phone rang, i pulled over, it was the nurse, where are you, i told you to see me before you went, i need to do some urgent blood tests and give jack some cream!, well why didnt she say so before? we looked for her and she wasnt there, jack felt like awful he didnt want to sit hanging around he either wanted to be admitted, if he couldnt then he wanted the confort of his own bed. but anyway i turned around and when we got there his nurse said to me, "anyway i would advise you stay here with us until 5 just in case" in case of what, and if that was the case why didnt she tell us that before? if that was her professional opinion then tell us, or had someone in the maentime told her it was best we stayed there! i do wonder, so we stayed till 5pm and then was told to go home and call at 8.30 to check the bed was ready, i got him home his parents dashed round, he was on the sofa now, he was crying he said he felt like he was dying, i'd had enough so i aclled the ward he was due to go on, nothing they could do the bed wasnt free yet, i told them how bad he was, and the woman i spoke to said if he was that bad then call an ambulance and he would go to a&e, and it was a 5hour wait to be seen by a doctor! it was 7pm, so did we wait until 9pm for the bed or take him now to a&e and wait until midnight for a doctor, that would then say he needed a renal dotor to see him! so his dad took him upstairs and tried to settle him in bed for an hour, i rang again at 8pm, the bed was his, it would be ready at 9.15, so we got there at 9pm, just in case someone else was there to pip us to the post, me and his dad stayed with him until about 11.30, then we had to leave people were trying to sleep, plus they said they may not do anything with him tonight, they did lots of tests to decide if they needed to get the registrar to come and put an urgent line in, so we went home, i didnt sleep a wink, there was no one to put a line in that night, so they got a doctor to come and do it on the tuesday, he was in agony cause they didnt put him to sleep! his neck was all swollen and he was still feeling really ill cause he was yet to have any kind of dialysis. that night they decided they couldnt wait for the lines to bed in, they needed to give him dialysis, so they did just that, only a 2 hour session, rather than the full 4, he was so ill he lay on the bed looking like death warmed up, i felt so helpless, there was nothing i could do. although i did feel useful getting some letters and id together for them both(himand his dad) the tissue authority have to have proof that people are related when giving a living donor, just in case it is someone paying someone for a kidney, which i can understand if someone is doing it for a friend,,but all the blood tests and tissue matches they had had you would think they could work it out that they were related, we had to get letters off family and friends of them stating they were father and son, red tape i suppose, and a big waste of nhs resources, having them all photocopied at the hospital, then having an appointment where you take the proofs just to prove they are father and son! so anyway jack is now on hemodialysis, he has only had 2 full sessions and hes been ill after each one, so we have yet to see what happens, yesterday he was being sick afterwards and was really ill, here is hoping next time is better, and hey we are upto date just about, so i can update this each day if i get the chance. i do this in the night when i cant sleep and my head is buzzing around, which is most of the time.