christmas and a happy new year!

so on xmas day jack was feeling really ill,he had to weigh himself everyday to check he wasnt overloaded with fluid from his night on the machine, or dehydrated if it had taken too much off him, so he had a dry weight we had to stick to, and each litre of fluid in him was an extra kilo, so we had to allow for the fluid it left in him, but on xmas day he was 4 kilos heavier, so was being sick, he was very dizzy and faint feeling, he was in a right state, he was very tired too, he loves xmas, we have a great time opening our presents, so i took him to his mum and dads, that was the plan and i was going to make lunch. at his mum and dads he got worse, we rang the renal ward and explained and they told us to take him up, his dad said he would take him so i could have half an hour on the sofa, i was shattered from the night before, they were gone for over 3 hours, but thankfully when he got there his favourite consultant was doing wrd rounds and he got to see him and he advised us what to do that night, to draw the fluid off by using different strength solution, so at least we got to speak to someone and had a plan, we all went back to ours and me and his mum and dad st at the dinning table ating our xmas lunch and jack lay on the sofa watching us, it wasnt the christmas i dreamed of, or jack dreamed of, he opened his presents in a haze, to be honest i was glad when xmas day was over, i was so tired i remember having a really bad headache, i wanted my bed, but i dreaded goingto bed, cause we never knew what would happen,on boxing day his mum and dad were doing a buffet and his brother and girlfriend were visiting, so we went round, but he was ill again as soon as he ate something he felt off and still very sickly, so we came home at 5pm and he went to bed and i sat downstairs and cried my eyes out, its was 5pm on boxing day, jack was in bed and i was sat upset on my own, when more than likely the rest of the world was having fun, what did we do to deserve all this? between boxing day and new year it wasnt too bad, a few alarms in the nights but we coped well,and on new years eve e stayed in, i did a little buffet, jack loves a buffet! so i did one just for him, then we popped round to see our neighbours to wish them a happy new year and sat chatting for an hour, it was nice, i felt like we had been out even though we had only been next door, we were so use to our four walls and the hospital, it was good to speak to someone that wasnt a nurse or a doctor. a few days after new year jack was rushed into hospital again, similar kind of stuff, so he decided no more, he didnt want to go on the machine again, he chose to go onto capd, which was alot gentler.